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National Support Organisations

National Support Organisations

 

Below you can find National Support Organisations and Services that support children/young people with Special Educational Needs & Disabilities (SEND).  These are Organisations we have most enquiries about. 

Please visit each website or call Services that are applicable to you in order to find out in more detail what support they can offer.  

 

ACE Education and Advice

ACE Education offer Information Advice & Support on a range of topics such as Exclusions, Admissions, Bullying and SEND. You can access their Service by contacting them on:

Telephone - 0300 0115 142

 

 

The ADHD Foundation

The ADHD Foundation works in partnership with individuals, families and other agencies to raise awareness of ADHD. You can access Information Advice and Support by contacting them on:

Telephone - 01512 372661

 

 

Beams

Beams offer Information, Advice and Support to ensure parents have the right information to make important decisions for their disabled child/ren. 
You can obtain support from them by contacting:

Telephone - 01322 668501

 

 

British Deaf Association

Equality. Access. Freedom of choice. The BDA is the UK’s leading registered charity led by Deaf people, for Deaf people. You can contact them on:

Website - www.bda.org.uk/

 

 

British Dyslexia Association (BDA)

The BDA is the voice of dyslexic people. They aim to influence positive change to influence and promote a dyslexia friendly society that enables dyslexic people of all ages to reach their full potential. They offer Information Advice and Support regarding Dyslexia. You can contact them on: 

Telephone - 0333 405 4555

 

 

Bullying UK

If your child is being bullied at school, Bullying UK can offer information, advice and support. For further information on support that they offer you can contact them on:

Telephone - 0808 800 2000 

 

 

CEREBRA

This children’s charity works to support families with children with brain conditions. You can find out more information by contacting them on:

Telephone - 01267 244 200

 

 

Challenging Behaviour Foundation

We are the charity for people with severe learning disabilities whose behaviour challenges. We’re making a difference to the lives of children and adults across the UK through

  • providing information about challenging behaviour
  • peer support groups for family carers and professionals
  • supporting families by phone or email
  • running workshops to reduce challenging behaviour
  • speaking up for families nationally / campaigning

You can contact them on: 

Telephone - 0800 666 0124

 

 

Contact (Previously Contact a Family)

Contact offer Information Advice and Support to families with Children that have SEND. They provide support on a wide range of topics such as Education, Health & Social Care. They also offer financial advice and provide opportunities to allow you to speak with other parents. 

You can contact them on:

Telephone - 0808 808 3555

 

 

The Children’s Sleep Charity

This charity provides parents, professionals with information and support on sleep issues. You can contact them on: 

Telephone - 01302 751416

 

 

Down’s Syndrome Association

The Down's Syndrome Association offer Information Advice and Support about Down's Syndrome. Here you will find answers to questions that are often asked about Down’s syndrome. 

For further information please contact them on:

Telephone - 0333 1212 300

 

 

Dyspraxia Foundation

The Dyspraxia Foundation offers Information Advice and Support to discuss problems and issues you may encounter with Dsypraxia; offering help and advice to people with dyspraxia, parents, carers, and families about or on the subject of dyspraxia.

You can contact them on:

Telephone - 01462 454986

 

 

Family Fund

Family Fund is a nationwide charity who helps families across the UK who are raising disabled or seriously ill child/ren or young person aged 17 or under. Grants can be applied for a range of different things such as washing machines, furniture, sensory toys and clothing. You can find additional information on their website such as the eligibility criteria.

To find out more information, you can contact them on: 

Telephone - 01904 550055

 

 

Family Lives

Family Lives aims to transform the lives of families by supporting parents at building happier relationships. The aim is for happier families and a stronger society.  They offer support on a wide range of topics such as Bullying, Teenagers, Early Years and Family life. 

You can contact them on:

Telephone - 0808 800 2222

 

 

Gingerbread

Gingerbread works with single parent families. They support, advise and campaign with single Mum’s & Dad’s to help them meet their family’s needs. 
For additional information, you can contact them on: 

Telephone - 0808 802 0925

 

 

Independent Provider Special Education Advice (IPSEA)

IPSEA offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs and disabilities (SEND). Visit IPSEA website for more information on the following link:

Telephone - You must book a slot on their website to speak with an advisor. 
Website - www.ipsea.org.uk

 

 

KIDS

KIDS is a charity that offer a wide range of services to children and young people with SEND and their families. Visit their website for more information:

Website - www.kids.org.uk

 

 

MENCAP

MENCAP services provided range from round-the-clock care to helping someone join in with local leisure activities, providing advice and information on things like employment and education, helping someone to live independently for the first time, and even things like reporting a crime to the police. 

You can contact them on:

Telephone - 0808 808 1111

 

 

National Autistic Society (NAS)

The National Autistic Society is the leading UK charity for autistic people (including those with Asperger syndrome) and their families. They provide a wide range of support on matters relating to Education, Health and Family life.

You can contact them on:

Telephone - 0808 800 4104 

 

 

Papyrus UK - Suicide Prevention Charity

Papyrus is the UK Charity for the prevention of young suicide (under 35). They provide Information Advice and Support through their website resources and dedicated HOPELINE available for families. Children & Young People can phone the helpline themselves for support.

Telephone - 0800 068 4141

 

 

Rainbow Trust – Children’s Charity

Rainbow Trust supports families who have a child aged 0-18 years with a life threatening or terminal illness and are in the greatest need. Any family can receive support from the moment of their child or young person’s diagnosis.

For more information, you can contact them on: 

Telephone - 01372 363438 

 

 

Royal National Institute of Blind People

The Royal National Institute of Blind People is a UK charity offering information, support and advice to almost two million people in the UK with sight loss. You can contact them on:

Telephone - 0303 123 9999
Website - www.rnib.org.uk

 

 

Royal Society for Blind Children

The Royal Society for Blind Children is a UK charity offering information, support and advice to families of Children and Young People with sight loss. You can contact them on:

Telephone - 0203 198 0225
Website - www.rsbc.org.uk

 

 

Scope

This Organisation provides information and support to disabled people. Here you will be able to find some hints and tips to help your child get a good night’s sleep. 

For more information, please contact them on:

Telephone - 0808 800 3333

 

 

Sense

Sense offer personalised support through their centres, holidays and short breaks, or in people’s own homes. In addition to practical support, they also offer information to families and campaign for the rights of people with complex disabilities to take part in life. 

You can contact them on:

Telephone - 0300 330 9256
Website - www.sense.org.uk

 

 

SOS!SEN 

We offer a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on Special Educational Needs and Disability (SEND). You can visit their website on the following link for additional information -

Website - www.sossen.org.uk 

 

 

Whizz-Kidz Mobility Equipment 

Whiz-Kidz provides a range of mobility equipment to children and young people with a physical disability to give them independence at home, at school, and at play.  If the local NHS Wheelchair Service does not provide equipment to meet the essential mobility needs of your child then they may be able to help. 

If you would like to find out additional information, you can contact them on:

Telephone - 020 7233 6600

 

 

Young Minds

Young Minds is a UK leading charity committed to improving the emotional wellbeing and mental health of children and young people. For more information, you can contact them on:

Telephone - 0808 802 5544