National Support Organisations

National Support Organisations

 

This section includes some of the national support organisations and services that support children/young people with special educational needs & disabilities (SEND). 

Please contact the service directly to find out what level of support they can offer you.

 

The ADHD Foundation

The ADHD Foundation works in partnership with individuals, families and other agencies to raise awareness of ADHD.

For more information you can contact them via:

 

 

Beams

Beams offer information, advice and support to ensure parents have the right information to make important decisions for their disabled child/ren.

For more information you can contact them via:
 

 

 

British Deaf Association

Equality. Access. Freedom of choice. The BDA is the UK’s leading registered charity led by deaf people, for deaf people.

For more information you can contact them via:

 

 

British Dyslexia Association (BDA)

The BDA is the voice of dyslexic people. They aim to influence positive change to influence and promote a dyslexia friendly society that enables dyslexic people of all ages to reach their full potential. They offer information, advice and support regarding dyslexia.

For more information you can contact them via:

 

 

Bullying UK

If your child is being bullied at school, Bullying UK can offer information, advice and support. 

For more information you can contact them via:

 

 

CEREBRA

This children’s charity works to support families with children with brain conditions. 

For more information you can contact them via:

 

 

Challenging Behaviour Foundation

We are the charity for people with severe learning disabilities whose behaviour challenges. We’re making a difference to the lives of children and adults across the UK through

• providing information about challenging behaviour
• peer support groups for family carers and professionals
• supporting families by phone or email
• running workshops to reduce challenging behaviour
• speaking up for families nationally / campaigning

For more information you can contact them via:

 

 

Contact

Contact offer information, advice and support to families with children that have SEND. They provide support on a wide range of topics such as education, health & social care. They also offer financial advice and provide opportunities to allow you to speak with other parents. 

For more information you can contact them via:

 

 

The Children’s Sleep Charity

This charity provides parents, professionals with information and support on sleep issues. 

For more information you can contact them via:

 

 

Down’s Syndrome Association

The Down's Syndrome Association offer information, advice and support about Down's syndrome. 

For more information you can contact them via:

 

 

Dyspraxia Foundation

The Dyspraxia Foundation offers information, advice and support to discuss problems and issues you may encounter with dsypraxia; offering help and advice to people with dyspraxia, parents, carers, and families about or on the subject of dyspraxia.

For more information you can contact them via:

 

 

Family Fund

Family Fund is a nationwide charity that helps families across the UK who are raising disabled or seriously ill child/ren or young person aged 17 or under. Grants can be applied for a range of different things such as washing machines, furniture, sensory toys and clothing. You can find additional information on their website such as the eligibility criteria.

For more information you can contact them via:

 

 

Family Lives

Family Lives aims to transform the lives of families by supporting parents at building happier relationships. The aim is for happier families and a stronger society.  They offer support on a wide range of topics such as bullying, teenagers, early years and family life. 

For more information you can contact them via:

 

 

Gingerbread

Gingerbread works with single parent families. They support, advise and campaign with single Mums and Dads to help them meet their family’s needs. 

For more information you can contact them via: 

 

 

Independent Provider Special Education Advice (IPSEA)

IPSEA offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs and disabilities (SEND).

For more information you can contact them via:

 

 

KIDS

KIDS is a charity that offer a wide range of services to children and young people with SEND and their families. 

For more information you can contact them via:

 

 

MENCAP

MENCAP services provided range from round-the-clock care to helping someone join in with local leisure activities, providing advice and information on things like employment and education, helping someone to live independently for the first time, and even things like reporting a crime to the police. 

For more information you can contact them via:

 

 

National Autistic Society (NAS)

The National Autistic Society is the leading UK charity for autistic people (including those with Asperger syndrome) and their families. They provide a wide range of support on matters relating to education, health and family life.

For more information you can contact them via:

 

 

Papyrus UK - Suicide Prevention Charity

Papyrus is the UK Charity for the prevention of young suicide (under 35). They provide information, advice and support through their website resources and dedicated HOPELINE available for families. Children & young people can phone the helpline themselves for support.

For more information you can contact them via:

 

 

Rainbow Trust – Children’s Charity

Rainbow Trust supports families who have a child aged 0 -18 years with a life threatening or terminal illness and are in the greatest need. Any family can receive support from the moment of their child or young person’s diagnosis.

For more information you can contact them via:

 

 

Royal National Institute of Blind People

The Royal National Institute of Blind People is a UK charity offering information, support and advice to almost two million people in the UK with sight loss. 

For more information you can contact them via:

 

 

Royal Society for Blind Children

The Royal Society for Blind Children is a UK charity offering information, support and advice to families of children and young people with sight loss. 

For more information you can contact them via:

 

 

Scope

This organisation provides information and support to disabled people. Here you will be able to find some hints and tips to help your child get a good night’s sleep. 

For more information you can contact them via:

 

 

Sense

Sense offer personalised support through their centres, holidays and short breaks, or in people’s own homes. In addition to practical support, they also offer information to families and campaign for the rights of people with complex disabilities to take part in life. 

For more information you can contact them via:

 

 

SOS!SEN 

SOSSEN offer a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on special educational needs and disability (SEND). 

For more information you can contact them via:

 

 

Tourettes Action

Tourettes Action is a national charity dedicated to supporting individuals with Tourette syndrome and their families. Their aim is to ensure people with Tourette syndrome are accepted, supported and embraced.

They provide a range of services including a dedicated helpdesk to provide pre and post Tourette's diagnosis, online and face to face support groups and an education service who can liaise with school/college to help get the right support in place.

For more information you can contact them via:

 

 

Whizz-Kidz Mobility Equipment 

Whiz-Kidz provides a range of mobility equipment to children and young people with a physical disability to give them independence at home, at school, and at play.  If the local NHS Wheelchair Service does not provide equipment to meet the essential mobility needs of your child then they may be able to help. 

For more information you can contact them via:

 

 

Young Minds

Young Minds is a UK leading charity committed to improving the emotional wellbeing and mental health of children and young people. 

For more information you can contact them via: